Bad News I Am Affraid

[ausjack]

:blush2: it's really not my fault Bruce

Yeah it is. I was trying to call you and all..

You know that's all porky pies as I didn't hear any beep beep's as I do when anyone else tries to ring when I'm on the phone, I'll have to give you my mobile number as I don't use it much
Yeah too right RG, sometimes a long road back home, I have taken many many years and there finally getting a little better over time as I can get off a lot of the meds because at one stage I was on about 26 pills a day and couldn't remember who I was half the time and as for having a conversation well that was totally none existent as I was off with the pixies as they had me addicted to morphine really quickly and happy to keep feeding me but I didn't like the feeling of having a brain that was trapped but when the Dr's are tellin you shit you tend to listen or try after it's your brain they've been screwing with. But what really annoyed me the most was trying to explain different things happening to me like being temperature sensitive amongst many other things and them take no interest at all.

So yeah I know the worst of it and didn't want Kim to go thru any of what I have as it's not good and the mental pressure of only having a few visitors make you appreciate how someone else might like a friend in a time of need :friends:

[Fulvio]

So yeah I know the worst of it and didn't want Kim to go thru any of what I have as it's not good and the mental pressure of only having a few visitors make you appreciate how someone else might like a friend in a time of need :friends:

Likewise. Hospitals are funny places... you go from being the centre of attention, with dozens of people all over you like an army of ants, giving their undivided attention and skills for your survival and wellbeing, to gradually becoming an afterthought, a lump of flesh occupying valuable real estate needed for the next statistic to roll in the door.

As you slip seamlessly from one extreme to the other, its not just the carers who seem to forget about you. The outside world moves on, priorities shift, people pretty much forget you exist. Eventually comes the time you get pushed out the door, and its even hard to get a lift home. Weeks and months and years later, people who are supposed to care seem oblivious to you having ever being absent, let alone hanging onto life by a thread.

The longer a hospital stay, the fewer and further apart the visitations. Obligatory duty covered, you get packed away alongside the xmas tree and box of birthday cards until the next round falls due.

The round-the-clock care and attention wanes as injuries heal, and the steady stream of tests and observations, medications and welfare checks turn into an occasional peek to see if there's a spare bed yet, and the odd tray of terrible food becomes a highlight of the day. Annoyance at the constant interruptions morphs into a yearning for human contact. Any contact. You start looking at the newcomer's steady stream of visitors and hoping they say hello, so you can snatch a few words and a smile from strangers. You wait for your own visitors, who never seem to come, because they have 'real life' to deal with, and you 'don't need' them.

We've all been there and done that... ...or we will. The more fortunate of us will have caring immediate family nearby, but as the distance increases, in miles and relationship, the costs, in time and money mount. Even spouses fail to show daily, and the visits get shorter as more pressing demands take priority. Life goes on.

And its crushing. Sometimes its better to just disappear and be anonymous from the start. To surf alone the tangle of surgeries and tubes, needles, specialists, pills and nurses, keeping the sympathy in reserve for when its truly needed, when the machine moves on and leaves you behind to fend for yourself. When the last intrusion is removed, the last form filed, the last hourly observation recorded, when the hours become empty black holes, let the world then become aware of the horrors which befell you, that they may come and lend a welcome hand of friendship in your true hour of need.

Well, when I found out about Kim, I decided that this time things would be different. I'm fortunate to be nearby, and to live much of my life in the virtual world, where as long as I can connect I can be equally effective from my desk to bed to McDonald's to a hospital room. I'm on this, cos I care, and I can, and I remember.

We all care. That's what community is. Whether we can visit or ring or send tokens or type messages of support, together we weave a fabric, a web, a safety net.

We're here for you, Kimmy. :heart:

[Nevol]

Keep on getting well Kim and it's great to see you  posting again.  I hope your poor body is mending well and that you will be back to full strength very soon.
:friends: :give_heart: :give_rose:

[ausjack]

:cray: :cray: :cray: :cray: :heart:
Ok a lot probably don't know but this is why I have been so frightened as I honestly do know what ALL this is all about after getting chronic thrombosis so sorry for the poor pic's but like I said I'm right handed and as you can see can't even draw a straight line with my left but the solid line is where it runs now and the dots are where it was and this runs from my wrist to my shoulder and I really don't want my beautiful little mate to end up like me



and it's hard to tell sorry but this is my elbow and you can just see a little lump, well that's where the thrombosis pulls my flesh as it's like a hard bit of cord now

and I know about tumours and brains copping both together so it's been a real learning curve and why I have been so honestly concerned

I was 33 when it all went to hell on me and taken me 10 years to get back just a fraction of what I was to where I am today but I'm still here :yahoo: so even in the worst of times people try and remember to smile..it makes people wonder what you've been up to :winkextra: But I'm sorry I get down so please forgive me.

This is why I have been so stressed and every little bit of good new help relieve it so come on little mate I need you back with me real soon, love ya heaps so the BIGGEST cuddles going out to you :friends:
But it is amazing how our bodies repair them selves or do things like blow out the next biggest vein as the blood still has to flow
And yes it hurt like hell to smile as I couldn't open my mouth any further than about 3mm so I had to have every thing purée and is it terrible, yuck and as for pork, the most feral thing I have ever had. So yeah I've eaten thru a straw

[purplepennyhunter]

Fulvio,  I for one appreciate you being able to pop in and check-in and hang out with Kim and help her out when she can't. I am not able to do this so I appreciate that you can, thank you.

[ausjack]

Yes a HUGE thanks to Bruce and Fulivo for all their time and effort, I really appreciate it :thank_you:
Here's a song by cocker, that I think is very approperate, you're so beautiful :give_rose:
http://www.youtube.com/watch?v=xsOSt3hNRY0
being a over a 1000km away isn't fair but I will get there very soon :ok:

[robbiegal]

So yeah I know the worst of it and didn't want Kim to go thru any of what I have as it's not good and the mental pressure of only having a few visitors make you appreciate how someone else might like a friend in a time of need :friends:

Likewise. Hospitals are funny places... you go from being the centre of attention, with dozens of people all over you like an army of ants, giving their undivided attention and skills for your survival and wellbeing, to gradually becoming an afterthought, a lump of flesh occupying valuable real estate needed for the next statistic to roll in the door.

As you slip seamlessly from one extreme to the other, its not just the carers who seem to forget about you. The outside world moves on, priorities shift, people pretty much forget you exist. Eventually comes the time you get pushed out the door, and its even hard to get a lift home. Weeks and months and years later, people who are supposed to care seem oblivious to you having ever being absent, let alone hanging onto life by a thread.

The longer a hospital stay, the fewer and further apart the visitations. Obligatory duty covered, you get packed away alongside the xmas tree and box of birthday cards until the next round falls due.

The round-the-clock care and attention wanes as injuries heal, and the steady stream of tests and observations, medications and welfare checks turn into an occasional peek to see if there's a spare bed yet, and the odd tray of terrible food becomes a highlight of the day. Annoyance at the constant interruptions morphs into a yearning for human contact. Any contact. You start looking at the newcomer's steady stream of visitors and hoping they say hello, so you can snatch a few words and a smile from strangers. You wait for your own visitors, who never seem to come, because they have 'real life' to deal with, and you 'don't need' them.

We've all been there and done that... ...or we will. The more fortunate of us will have caring immediate family nearby, but as the distance increases, in miles and relationship, the costs, in time and money mount. Even spouses fail to show daily, and the visits get shorter as more pressing demands take priority. Life goes on.

And its crushing. Sometimes its better to just disappear and be anonymous from the start. To surf alone the tangle of surgeries and tubes, needles, specialists, pills and nurses, keeping the sympathy in reserve for when its truly needed, when the machine moves on and leaves you behind to fend for yourself. When the last intrusion is removed, the last form filed, the last hourly observation recorded, when the hours become empty black holes, let the world then become aware of the horrors which befell you, that they may come and lend a welcome hand of friendship in your true hour of need.

Well, when I found out about Kim, I decided that this time things would be different. I'm fortunate to be nearby, and to live much of my life in the virtual world, where as long as I can connect I can be equally effective from my desk to bed to McDonald's to a hospital room. I'm on this, cos I care, and I can, and I remember.

We all care. That's what community is. Whether we can visit or ring or send tokens or type messages of support, together we weave a fabric, a web, a safety net.

We're here for you, Kimmy. :heart:

Fulvio
I work in health and I do believe that what you have written here is an incredible story of the patient experience
gee, I would love to take this to my work place and somehow have it printed into a poster format
it is so similar to what patients have said to me over the years, little bits here and there and you have articulated it so beautifully and frankly,
how you have described the hospital administration is clearly worded in there as well

[ausjack]

yes a very good job Fulvio and wish I could write like that and not be a part retard, I was lucky my mum and aunty come up but no friends, no cards no nothin and a lot I still haven't heard from but you soon realised who your friends really are when you need them the most.

But I don't think it would have make one bit of difference to any of the medical people I have been so very unfortunate enough to have to deal with RG but I think it would be a very stressful job and can see why people quickly detach them selves from it. Honestly people don't care any more as it's a real dog eat dog world and that's why I love the forum so much, there's some top, loving and truly beautiful caring people here and so wish more of the general populous would be the same.

Yeah sometimes I can honestly say I wish I didn't make it off the table but then someday I'm glad I'm still here but we all have our days and that's why I keep saying it's the little things like email or even the odd phone call can make such a HUGE difference as to me they honestly do..a lot don't know how lucky they really are :friends:

[robbiegal]

occasionally we have people on some ward for years
I often wonder just what those hidden inner thoughts are like
Fulvio's story there, for sure touches on many unsaid thoughts

ps - remember too that 10-15 years ago - mobile phones, computers, notebooks etc were not like how they are today

this sentence really resonated with me

"The longer a hospital stay, the fewer and further apart the visitations. Obligatory duty covered, you get packed away alongside the xmas tree and box of birthday cards until the next round falls due."

[ausjack]

yes how very true, but some visitors, well any actually would have been really nice. Yes nice that family come but for some reason it's just not quite the same, maybe because we partly expect them to but then some people don't have family either

Please don't wonder mate go ask because I'm sure if they can they will tell you as it gets very lonely and I think that's why people get shunned is because we all want some sort of human contact and even if it's the cleaner it is very often appreciated so next time maybe pop in and say G'day, I see a very kind soul in you RG :friends:

[Fulvio]

I would love to take this to my work place and somehow have it printed into a poster format

If it helps, do with it as you will. :heart:

[robbiegal]

thanks
happy for you to pm your real name or even your first name
John's story, something like that
 if you'd like it on something like a poster - otherwise it can be anon

i really liked it - it made so much sense to me for sure & the stuff that AJ talks about as well

i'd show you any end product - first

[Fulvio]

But it is amazing how our bodies repair them selves or do things like blow out the next biggest vein as the blood still has to flow

Remember our TurkShibe friend, from my deleted post? He had Deep Vein Thrombosis from sleeping sitting up on a wooden bench at the bus station for eight months. We got him the money for a doctor and medication, and I sent him one of my compression socks, because I knew first hand what would happen if he didn't get help. Then we found an expat american English teacher who took him out to lunch one day and let him use the shower, then offered to let him move in if we could raise $100. We did, he moved in, told his story on Reddit and people were so moved they showered him with money. Fast forward a month, and he's about to move to the southern coast where a job and room and board await him. The future is no longer bleak.

We have a saying in the Dogecoin community.. PIF - Pay it Forward. There's even a sub called DogeCoinPIF.

Well, one of the guys who helped put Eki back on his feet, who provided my ShibeNet.org domain and servers for it and Eki's Turkish Dogecoin project, unexpectedly hit his own troubles the other day. He found out that as the result of a terrible mistake he made as a teenager, he now has an incurable disease, which needs $6,000 a month of medication to stop him dying prematurely. He was already severely depressed after losing his job a week ago, and was ready to take his own life. There is a solution though.. if we get him airfare, he can go to Holland, where he has family, accommodation, employment, and most importantly free medical treatment.

This is where PIF comes in. We're working on fundraising to get him there. There are plenty of detractors of course.. I've been called some terrible names, accused of being a scammer and worse. But guess who's up front, leading the charge and trying to save his life? Yep, the victim has become the saviour. I'm so proud of him I could burst.

Why am I telling you this? Because this is what community is all about. Anybody can share an interest, be it coins or cars or sports or whatever. But to forge a diverse group of people, each with their own viewpoints and foibles and problems into a true community is something special. The whole transcends the sum of the parts.

That's what makes the forum so special. Every one of the people who have posted in this thread, who have shown they really care, have made our community that much stronger by their words and actions.

I feel priviledged to know you all, whether we've met or not. :heart:

happy for you to pm your real name or even your first name

LOL.. given that I'm all over the media now with the Supercar thing, its no big secret. Fulvio Gerardi.

I don't care for recognition. That's not why I do what I do.

As I said, use the words as you will. Use my name, or not, as you see fit. Whatever you think works best. I trust you.

[robbiegal]

good on you
the world is a better place when you are out there and in it
I have spent my entire career spanning a few decades helping people so most of the time, by the time I get home - I am all about me and my family
I admire your passion and keep it up
what goes around, comes around

sustaining it and yourself, is the key

[ausjack]

Why am I telling you this? Because this is what community is all about. Anybody can share an interest, be it coins or cars or sports or whatever. But to forge a diverse group of people, each with their own viewpoints and foibles and problems into a true community is something special. The whole transcends the sum of the parts.
That's what makes the forum so special. Every one of the people who have posted in this thread, who have shown they really care, have made our community that much stronger by their words and actions.

 I feel priviledged to know you all, whether we've met or not.

I feel exactly the same mate :heart:

Your a very good man Fulvio and I feel very privileged, honoured and proud to call you my mate along with many others here :friends: And really good to hear things are picking up for the people you've helped :good:

RG if anything I put up about my life or experiences can help in anyway the same goes with me as for Fulvio, if it can help only one person that would make me feel pretty special. For years now I've wish I could put it all down on paper but like a lot of other things now it's a bit beyond me but glad to help any way if I can.
Oh and just in case you've forgotten my name is Jayson but everyone knows me as Jack..yeah one in every crowd and your lookin at him here :mocking:
Oh and why I come on sorry, for a little stir, yeah I know it's really hard to believe that I would stir anyone but true. Well I've not long got of the phone from the girl and man Kim is powering and sounding as bright as a button and I honestly don't think I've laughed so much as you never know what will come out next, what a wonderful bright bubbly personality and another one I'm just so proud, honoured and so very privilege to know such a special human being..I love ya so much little mate and to hear that spark in your voice fill my heart with joy and it won't be long and will be 100% :yahoo: